The Give a Spit website as well as all associated services provided in conjunction with Navagen Health Partners are designed to educate patients with general information based on nationally-recognized guidelines. Our education service is meant to be used as a framework for discussions with your own physician. Any education provided through our service is not a substitute for advice from your own physician. While we make every effort to update our recommendations to be up to date and accurate, guidelines can change quickly and we make no guarantee of the accuracy of education we provide or of outcomes achieved.
We may help connect you to a physician for advice, testing or any other medical services. In that case, that physician is completely independent of Give a Spit and Navagen Health Partners and while we make every effort to only refer to competent and qualified physicians, we make no guarantee of their advice, any aspect of quality of care or outcomes.
Your privacy is extremely important to us. You are trusting us with very personal information and we take that trust very seriously. Your data is encrypted through SSL to ensure a private dialogue with Give A Spit. We will never sell your contact or personal information or share it with anyone, without your explicit approval and/or request for us to do so, and only for the express purpose of coordinating your care. We will only contact you when we have something important to share… such as updated information about your health risks, new research, and new interventions that could potentially reduce your risks.
Navagen Health Partners, the parent company of the Give A Spit Campaign, is required by law to (i) maintain the privacy of protected Health Information; (ii) Give you this notice of our legal duties and privacy requirements regarding Health Information about you; and (iii) Follow the terms of our notice that are currently in effect.
This Privacy Notice describes the types of information we collect from and about you when you visit any of our websites where this policy is posted (or the mobile optimized version of the website) (each a “Site”). This Privacy Notice also explains how we may use and disclose such information, as well as your ability to control certain uses of it. By using the Site, you agree to the collection, use, and disclosure of your personal information as described in this Privacy Notice. If you do not, please do not use the Site.
We collect certain personal information from you when you choose to share it with us. This may include when you use one of our Sites; complete a Risk Assessment questionnaire; register on one or more of our Sites; sign up for a newsletter or one of our email lists; use our services; participate in a survey, or promotion; request information from us; or otherwise contact us. The personal information we collect may include your name, birth date or age, lifestyle information, health history, family health history, telephone number, e-mail address, and home address.
We don’t require you to register or provide personal information to view our Sites, access much of its content, or to complete a Risk Assessment questionnaire anonymously. However, you may be required to provide certain personal information to create a Site account, use certain features, or receive certain services. For example, when you participate in certain interactive features on our Sites, such as registering to view detailed Risk Assessment results and to use our services, you may also provide us with certain information like your e-mail address, family names and email addresses, city and state of residency, or submit content, such as questions about your results, support requests, comments, or medical information to the Site.
In addition, we may give you the opportunity to tell your friends and family members about certain features or information on our Sites. If you take advantage of our features that allow you to share and collaborate with family and friends we will ask you for your friends’ or family members’ names and e-mail addresses to send the information to them that you requested. We also offer visitors to our Sites various features, which we may change from time to time. We may ask you to submit certain information so we can provide you with these features.
We may use the information we collect from and about you to contact you from time to time, including for any of the following purposes:
We or a vendor working on our behalf may use and disclose Health Information to contact you and to remind you that you have an upcoming laboratory test, screening or diagnostic test, appointment or other pending items with us. Please be advised that any communication via e-mail and/or an online portal is potentially insecure. Communications via a portal are, however, much more secure than communications via regular e-mail. Our recommendation, therefore, is that you communicate with use via the portal. By acknowledging receipt of this form, you give us permission to communicate with you electronically. Should you wish not to be contacted by either e-mail or via a user portal, please advise us accordingly in writing (at the below listed address, attention COO).
We do not sell or otherwise disclose personal information about our website visitors, except as described here. We do not share your personal information with unaffiliated third parties.
Except for below listed purposes, we will use and disclose your Health Information only with your written permission. You may revoke such permission at any time, by writing to us (at the below listed address, attention Chief Operating Officer). We may disclose your Health Information to doctors, nurses, technicians, or other personnel, including people outside our office, who are involved in your medical care and need the information to provide you with medical care. When appropriate, we may share Health Information with a person who is designated by you to represent you in your medical care or in payment of your care, such as your family or a close friend.
We also may use and disclose your Health Information as part of our quality assurance process. For example, we may use and disclose information to make sure the medical advice you receive is of the highest quality. We also may share information with other entities that have an authorized relationship with you (for example, your physician and your insurance health plan). Additionally, if you use the Site to connect with third party services, online resources, medical partners, laboratory partners, you authorize us to use information from and about you, on your behalf, to interact with these third party services based on your requests.
The Sites may contain links to other websites. We provide these links solely for your convenience and information. Different websites have different privacy practices. You should always check the privacy notice of the specific site you’re visiting to understand the privacy practices associated with that site. We are not responsible for the content or privacy practices of third party websites.
The security of your information is important to us. We have taken certain administrative, technical, and physical steps to safeguard the information we collect from and about our customers and Site visitors against unauthorized use, disclosure, alteration, or destruction. While we make every effort to help ensure the integrity and security of our network and systems, we cannot guarantee our security measures.
You have the right to inspect and copy Health Information that may be used to make decisions about your care or payment for your care. This includes medical and billing records. To inspect and copy this Health Information, you must make your request, in writing, to Navagen Health Partners (at the below address, attention COO). If you feel that Health Information we have is incorrect or incomplete, you may ask us to amend the information. You have the right to request an amendment for as long as the information is kept by or for Navagen Health Partners. To request an amendment, you must make your request, in writing, to: Navagen Health Partners (at the below address, attention COO). You also have the right to request a list of disclosures we made of Health Information for purposes other than treatment, payment, and health care operations or for which you provided written authorization. To request an accounting of disclosures, you must make you request, in writing, to Navagen Health Partners (at the below address, attention COO).
You also have the right to request restrictions or limitations on the Health Information we use or disclose for treatment, payment, or health care operations, and on Health Information we disclose to someone involved in your care or the payment of your care, like a family member or a friend. For example, you could ask that we not share information about a particular diagnosis or treatment with your spouse or brother. To request a restriction, you must make your request, in writing, to Navagen Health Partners (at the below address, attention COO). You also have the right to request that we communicate with you about medical matters in a certain way or only at a certain location. For example, you can ask that we contact you only by mail or at work. To request confidential communications, you must make your request, in writing to Navagen Health Partners (at the below address, attention COO). Navagen Health Partners, however, reserves the right to refuse unreasonable requests for special services.
You have the right to a paper copy of this notice at any time. Even if you have agreed to receive this notice electronically, you are still entitled to a paper copy. To obtain a paper copy of this notice, please contact Navagen Health Partners in writing (at the below address, attention COO) or through the user portal at the Give A Spit website.
Complaints: If you believe your privacy rights have been violated, you may file a complaint in writing with Navagen Health Partners (at the below address, attention COO) or with the Secretary of the Department of Health and Human Services. You will not be penalized for filling a complaint.
We may change or update portions of this Privacy Notice at any time. When we do, we will post the change(s) on the Site. Your continued use of the Site following the posting of changes to these terms means you accept these changes. Please check back from time to time so you are aware of any changes or updates to the notice. If we make any material changes, we will provide appropriate notice to you. We will indicate the notice’s effective date on the first page of the notice.
Our goal is to lift barriers to excellent health information and genetic testing. We provide you with education about genetic testing to help you understand your choices. A test will not be ordered ,however, without the review and approval of an appropriate healthcare provider. Genetic testing is a complex subject and you may wish to obtain professional genetic counseling concerning the risks and benefits of such testing, either before or after genetic testing. Upon your request, Navagen Health Partners will offer written information identifying a genetic counselor or medical geneticist in your community, thus providing you an opportunity to obtain professional genetic counseling.
Navagen Health Partners and the Give A Spit campaign has researched all available genetic tests and recommends using the MyRisk Hereditary Cancer test by Myriad Genetics. This test looks at 35 different genes. Mutations in those genes are responsible for many different types of cancers. While this test is comprehensive and looks at all the major cancer genes we currently understand, there may be a time down the road when you may decide to have updated testing as new information becomes available and new genes are discovered. This lab will check coverage for the test with your insurance company and contact you if you will have any out of pocket costs prior to running the test. Luckily, hereditary cancer testing is typically considered preventive care which means no out of pocket costs for most people.
Results of genetic testing may be negative or positive for deleterious mutations. These are genetic changes that can increase your risk for cancer. The results may also contain variants of undetermined significance (VUS), which means that there is insufficient data to fully understand or classify the significance of those genetic changes. However, the laboratory we use will continue to evaluate those changes and may potentially contact your ordering provider down the road when more information is available about that genetic change. Regardless of which result type you are found to have, you’ll be given an opportunity to review those results with a healthcare professional, ask questions, and receive a referral to an appropriate specialist if needed based on your results.
Your hereditary cancer results may affect your family members as well. If you carry a genetic mutation you will know that it came from one of your parents and that each of your children and siblings will also have a 50% chance of carrying the same genetic mutation.
Most cancers are sporadic and don’t occur in people with a strong family history of cancer. Even those with strong family history of cancer will usually receive negative cancer genetics results. Even with negative genetic testing results, however, your risk may still be elevated and there may be screening options available to you to lower your risk. For those who are found to carry one of the high risk cancer mutations, that knowledge is crucial to making a healthcare plan that can significantly lower your risks. This type of information will be discussed during your post-test consultation.
Thanks to the Genetic Information Nondiscrimination Act (GINA) your health insurance is prohibited by law from discriminating against you based on your genetic test results. Your testing can not affect your eligibility or premiums based on this law.
The diagnostic laboratory that performs the test will only release results to your ordering provider and to Navagen Health Partners so that we can help you obtain the proper counseling and follow up after your test.
By agreeing to the terms and conditions of this site, you agree that you have read the above informed consent for genetic testing.